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Welcome to Delaware Family Voices
Thank you for visiting the Delaware Family Voices and our Family to Family Health Information Center website.
Caring for children with special needs is often complex, and Delaware Family Voices and the Family to Family Health Information Center is in the unique position to help. Like you, we are parents of children and young adults with physical, developmental and mental health challenges, and we have firsthand experience navigating the maze of health care services and programs in our state.
We help families of children with special needs become informed, experienced, and self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded through federal grants.
This website provides families with valuable resources and information concerning children’s healthcare needs. If you have any questions or need additional information, please contact us.
Survey – Family Empowerment: ASD or Related DD
Can you spare a few minutes of your time to complete this anonymous survey from the Center for Disabilities Studies at the University of Delaware? The survey’s goal is to find out basic information about families with children who have Autism Spectrum Disorder (ASD) or a related Developmental Disability (DD) and if they feel empowered to participate in their children’s health care.
The information you provide will be used to help improve health care services for Delaware families of children with ASD/DD. Link to Survey
Delaware LifeSpan Respite Care Network Grants
Are you a care-giver? Check out the Delaware LifeSpan Respite Care Network (DLRCN) and its Respite Grant Program! Learn more about the DLRCN services, and how you might qualify for a DLRCN respite grant at Delaware LifeSpant Respite Care Network.
Pre-Employment Transition Services Program
Do you have a student with a disability? Then you need to check out the Division of Vocational Rehabilitation’s (DVR) new program, valid through 2018. It’s goal is to provide innovative employment focused programs statewide to students with a disability or students potentially eligible for DVR services who are enrolled in school, and are between 14 and 21.
Interested youth, families and school advisors should contact providers from the attached list for enrollment. These programs are offered at no cost to participants with the exception of the UD Center for Disabilities Studies EDGE Extension Program.
Managing Your DE Medicaid Managed Care Organization
Got questions? Confused about Delaware Medicaid? Delaware Family Voices is here to help you with your Delaware Division of Medical and Medicaid Assistance (DMMA Medicaid) concerns, issues and questions. We are just a phone call away at (302) 669-3030.
Here are three additional resources to consider when you have questions or issues with your DMMA program.
DE Family Voices Medicaid MCO Call-Ins
Ask questions during Delaware Family Voices’ Monthly MCO Calls, held the 2nd Tuesday of each month at 11:00 am. During this phone call, we can address your Medicaid MCO issues and questions. In addition to Delaware Family Voices and other families, representatives of DMMA, the MCO’s, and other providers from state agencies as well as the community often attend the MCO calls and work with you to be able to provide immediate resolution to your concerns.
Disability Law / Community Legal Aid Society
Know your MCO rights! This fact sheet, How To Manage Your Delaware Managed Care Organization, by the Disability Law Program (DLP) at Community Legal Aid Society, Inc. (CLASI) is a helpful resource for finding tips on what your rights are with your Medicaid Managed Care Organizations (MCO).
Anyone with health insurance coverage via a Delaware Medicaid MCO should read this fact sheet. If upon reading this fact sheet, you think you may need legal counsel to address an MCO issue, contact Community Legal Aid Society directly at (800) 292-7980 (New Castle County), (800) 462-7070 (Sussex County) or (800) 537-8383 (Kent County).
Not sure if you need legal help? Call Delaware Family Voices first. If your MCO concern appears to be an issue without a simple solution, we will refer you to Disability Law/Community Legal Aid Society for further consideration.
DE Division of Medical and Medicaid Assistance
The Delaware Division of Medical and Medicaid Assistance (DMMA) might also have answers to your MCO questions and concerns. Find answers to common questions about either Delaware MCO provider – Highmark Health Options and United Healthcare – at the DMMA website or by calling 877-877-8159 for United Healthcare questions, or 844-325-6251 for Highmark questions.
Got Questions? Call Us!
Don’t forget – Delaware Family Voices can – and should – be your “first stop” for questions about your child’s DMMA/MCO (including United Health and Highmark Health Options) coverage. We especially want to hear if you are experiencing an unexpected change in services, or if it is harder to find providers. The more we know about issues with DMMA and their MCO plans, the better we can advocate for improvements and changes to better serve our families.
Don’t let your medicaid/managed care (MCO) questions or concerns sit on the sidelines. We can help you get the most out of your MCO insurance coverage. Call Delaware Family Voices at (302) 669-3030 and let’s work out the issues together.
Delaware Family Voices & Parent to Parent USA
Delaware Family Voices is the official Delaware Parent to Parent program and alliance member of Parent to Parent USA. P2P provides emotional and informational support to the families of children with special needs, most notably through the one-to-one matching of parents seeking support with an experienced, trained ‘Support Parent’.
Contact Delaware Family Voices at (302) 669-3030 for more information and how you can become a P2P Support Parent, or to be matched with a P2P Support Parent.
Help Us Help Others In Need!
Delaware Family Voices does not charge for the services we provide. Our services are funded through federal grants and donations from the community at large. Would you like to help our efforts? Here are two ways you can help Delaware Family Voices help other families in need.
Donate to Delaware Family Voices
Your donation to Delaware Family Voices helps ensure we continue serving families in Delaware with their children’s special health care needs. Learn more on how your donations can further assist our cause on our Donate page.
Donate By AmazonSmile
Every little bit counts, whether it’s shopping through AmazonSmile, donating by check, or volunteering your time. Learn more about other ways you can Donate to Delaware Family Voices and how you can help us help Delaware families of children with special health care needs.
A Message from Ann Phillips, Delaware Family Voices Executive Director:
We at Delaware Family Voices are prepared to help you with your child’s special health care needs. With just one phone call, or one email, we are ready to assist you in whatever way we can. Don’t worry if you don’t know what to ask. We are here to listen, our objective to help you prioritize the steps you need to take for your child.
In continuation of our mission to better serve Delaware families and their children with special health care needs, we continue to provide programs, trainings and workshops as well as parent support through the Parent to Parent and Federation of Families programs. Check out our free Parent Respite Co-Op Program, designed to provide families of children with special health care needs a safe, nurturing environment in which to receive respite.
We want to encourage family involvement in all our projects, including the website. If you have a resource you think we should consider including on the website, tell us! Our website is as much your website as it is ours. There are also several opportunities for family involvement with Delaware Family Voices. Just check out our Volunteer page to find how you too can volunteer with us and help a family in need.
Lastly, please don’t ever hesitate to call us for assistance. Refer to the Delaware Family Voices Contact page for a complete listing of staff contact information as well as our office address.
All the best,
Delaware Family Voices
Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health & Human Services, Health Resources & Services Administration, Maternal & Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by Patient Protection & Affordable Care Act of 2010.
The Statewide Family Network is funded through a grant through the Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services.