Advocacy/Disability

ABLE National Resource Center

Providing families with resources from disability organizations nationwide. Bringing together the investment, support and resources of the country’s largest and most influential national disability organizations.
Website: ABLE National Resource Center

Link: Compare State ABLE Programs
Link:
Delaware ABLE

American Foundation for The Blind

Creating a world of no limits for people who are blind or visually impaired. Mobilizing leaders, advance understanding, and champion impactful policies and practices using research and data.
Website: American Foundation for The Blind

Americans with Disabilities Act (ADA)

Providing information and technical assistance on the Americans with Disabilities Act (ADA), including publications and videos that answer many ADA related questions.
Website: Americans with Disabilities Act. gov

Link: The ADA – Your Employment Rights as an Individual with a Disability – Information from U.S. Department of Labor on sections of the ADA that prohibit discrimination in employer-provided health insurance.

ADAPT

A national grass roots community that organizes disability rights activists to engage in non-violent direction action to assure the civil and human rights of people with disabilities to live in freedom.
Website: ADAPT
Contact Delaware ADAPT: Delaware ADAPT Group

Adaptive Physical Education (PE) Central

Providing the latest information about the developmentally appropriate physical education programs for children.
Website: PE Central
Link: Adaptive Physical Education Websites
Link: Adapted Physical Education Information/Resources

ADDitude – Inside the ADHD Mind

Resources for families and adults with ADHD and related conditions, and the professionals who work with them.
Website: ADDitude Magazine

Aging and Disability Resource Center (ADRC) of Delaware

ADRC is a one-stop access point for aging and disability information and resources in Delaware.
Website: Delaware ADRC
Toll Free: (800)-223-9074
Email: DelawareADRC@delaware.gov

American Lung Association of Delaware

Providing you with the most up to date information available to fight lung disease and promote lung health.
Website: The American Lung Association –  National
Link: The American Lung Association – Delaware
Contact: (302)  737-641

Asthma – Quality & Affordable Healthcare Fact Sheet

Guideline on the importance of quality and affordable healthcare coverage for people with asthma.
LinkAsthma – Quality & Affordable Healthcare Fact Sheet

ARC of Delaware

The ARC advocates for the rights, opportunities and self-determination of people with intellectual and developmental disabilities and their families.
Local Website: The Arc of Delaware
National Website: The Arc
Address: 2 South Augustine Street (Suite B), Wilmington, DE  19804
Contact: (302) 996-0683 / Toll Free: 1-800-232-5460

Attention Deficit / Hyperactivity Disorder – CDC Guides

By the Center for Disease Control and Prevention (CDC). Providing resources, guidelines, diagnosis and treatment options for Attention Deficit / Hyperactivity Disorder (ADHD).

Website: CDC ADHD Guide
Link: CDC Treatment of ADHD

BlindSight Delaware

Improving the quality of life for blind and visually impaired children and adults in Delaware through education, counseling and recreation programs.
WebsiteBlindSight Delaware
Contact: (302) 998-5913 / Toll Free: (888) 777-6925

Brain Injury Resources – National

Brain Injury Association of America (BIAA)

Mount Sinai School of Medicine-Brain Injury Research Center of Mount Sinai (BIRC-MS)

Center for Neuroscience and Regnerative Medicine

Brain Injury Association of Delaware – BIADE

Creating a better tomorrow for those affected by brain injury through prevention, education and advocacy.
Website: Brain Injury Association of DE
Contact: (302) 411-0505

Brain Injury Fund Assistance

State Council for Persons with Disabilities – funding available for the Traumatic Brain Injury Fund.
LinkApplication for Brain Injury Fund Assistance

Brain Injury Program – Administration for Community Living

Providing information and resources on issues relevant to individuals with TBI and their families. Learn about the complex and unique nature of TBI and its effects.
Website: Traumatic Brain Injury Program

Brain Line Military

Dedicated to providing help for military service members, veterans, national guard reserve and families affected by brain injuries. Providing military-specific information and resources on TBI.
Website: BrainLineMilitary

Brain Injury Guide and Resources

Helping people to better understand Traumatic Brain Injury (TBI). Learn more about treatment options and health care providers who offer TBI services.
Website: Brain Injury Education

Caring4OurKids

A collection of resources and links to helpful information for parents of kids with Autism Spectrum Disorder, Chronic Fatigue Syndrome or Fibromyalgia.
Website: Caring4OurKids

Center for Disabilities Studies at The University Of Delaware 

Enhancing the lives of individuals and families by education, prevention, services, and research on disabilities.
Website: Center for Disabilities Studies
Address: University of Delaware, 461 Wyoming Road, Newark, DE  19716
Contact: (302) 831-6974 or (302) 831-4689 (TDD)

Cerebral Palsy Guide

Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
Website: Cerebral Palsy Guide

Cerebral Palsy Guidance

Providing vital guidance and assistance to parents of children with cerebral palsy.
Website: Cerebral Palsy Guidance

Cerebral Palsy.Org – My Child

A comprehensive resource for everything related to Cerebral Palsy. Provides information, tips, resources, encouragement and inspiration to individuals touched by Cerebral Palsy.
Link: My Child at Cerebral Palsy.org

Cerebral Palsy Group

Providing information and support to individuals and their families who have been diagnosed with cerebral palsy.
Link: Cerebral Palsy Group

CHADD (Children and Adults with Hyperactivity Deficit Disorder)

Your source for information and support for people with ADHD. Improving the lives of people affected by ADHD.
Website: CHADD National Organization

Child, Inc.

Helping Delaware children and families in crisis by providing creative prevention and treatment programs that meet the changing needs of families.
WebsiteChild, Inc.
Contact: (302) 762-8989

Children and Families First

Serving children and families in need across Delaware. Providing comprehensive social services programs throughout the state to form a comprehensive continuum of quality social, educational and mental health services.
Website: Delaware Children and Families First
Contact: (302) 658-5177 / (800) 220-3092

Children with Diabetes

Supporting children with diabetes and their families. Dedicated to providing education and support to families living with type 1 diabetes.
Website: Children with Diabetes

Children with Disabilities and Transplants

Information for parents on transplants for children with disabilities.
Website: Transplants For Children with Disabilities

Cleft & Craniofacial Anomalies Clinic

Alfred I. DuPont Hospital For Children, 1600 Rockland Road, Wilmington, DE  19899
Contact:  (302) 651-4310
Website: Cleft & Craniofacial Anomolies At A.I duPont Hospital

Cystic Fibrosis Association

Searching for a cure for cystic fibrosis.
Website: Cystic Fibrosis Association
Website: Delaware Valley Chapter, CFA
Contact: (610) 325-6001 / Toll Free: (800) 378-8423

Delaware 2-1-1 Helpline

Delaware’s FREE online human service referrals and community resources. Provides one central resource for access to the health and human service organizations that offer the support to make a difference.
Website: Delaware 2-1-1
In Delaware: Call 2-1-1 or Toll Free: (800) 560-3372 or text: 302-231-1464

Delaware Division of Developmental Disabilities Services (DDDS)

Providing leadership for a service system that is responsive to the needs of the people by creating opportunities and promoting possibilities for meeting those needs.
Website: Delaware Division of Developmental Disabilities Services
Contact: (302) 836-2100 / Toll Free: (866) 552-5758

Delaware Division of Visually Impaired

Helping the blind and visually impaired to become and/or remain employed, independent, self-sufficient.
Website: DE Division of Visually Impaired

Delaware Family Voices

Supporting families with special needs.
Website: Delaware Family Voices
Address: 222 Philadelphia Pike, Suite 11, Wilmington DE 19809
Contact: (302) 669-3030 / Toll Free: (877) 235-3588

Delaware Foundation Reaching Citizens with Cognitive Disabilities (DFRC)

Dedicated to raising funds and consciousness in support of programs that enrich the lives of Delawareans with intellectual disabilities.
Website: Delaware Foundation Reaching Citizens
Contact: (302) 454-2730

Delaware Disabilities Law Program

Helping to provide equal access to justice, and improving lives, through free legal services to people with disabilities, low incomes, or who are age 60 and over.
Website: Delaware Community Legal Aid Society
Link: Delaware Legal Help Link

Down Syndrome Association of Delaware

Promoting public awareness, education and advocacy supporting individuals with Down Syndrome and their families.
Website: Down Syndrom Association of DE
Contact: (302) 995-1004

Dover Air Force Base Family Advocacy Program

Special Needs Program/EFMP
Website: Dover AFB Family Advocacy Program
Contact: (302) 677-2711

Easter Seals Delaware And Maryland’s Eastern Shore

Providing exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.
WebsiteEaster Seals Delaware and Maryland Eastern Shores
WebsiteEaster Seals National Organization
Address: 61 Corporate Circle, New Castle, DE  19720-2405
Contact: (302) 324-4444 / Toll Free: (800) 677-3800

Epilepsy Foundation

A statewide and national organization dedicated to improving the lives of people with epilepsy / seizure disorders.
Website: Epilepsy Foundation of Delaware
Website: Epilepsy Foundation – National
Contact: (302) 999-9313 – Kent/Sussex Counties use (877) 369-2266

Fetal Alcohol Spectrum Disorders (FASD) – SAMHSA

Resources to assist people affected by FASD and their families, state and local agency administrators, and service providers. 
Website: Fetal Alcohol Spectrum Disorders
Contact: (877) SAMHSA-7 / (877) 726-4727

Fetal Alcohol Spectrum Disorders (FASD) Task Force of Delaware

Providing leadership and fostering effective collaboration in addressing FASD prevention and intervention.
Website: FASD Task Force of Delaware

Healthy Children.Org

The American Academy of Pediatrics, dedicated to the physical, mental, and social health, safety and well-being of infants, children, adolescents, and young adults.
Website: Healthy Children
Contact: (630) 626-6000 (American Academy of Pediatrics for general questions only)

Hemiplegia & Stroke Association – Children

Helping children who have survived a brain injury that results in hemiplegia or hemiparesis.
Website: Children’s Hemiplegia & Stroke Association

The HIE Help Center

The HIE Help Center provides information and educational materials to families of children with Hypoxic-Ischemic Encephalopathy (HIE) to help them navigate the diagnosis.
Website: The HIE Help Center

Interactive Planner for Caregivers

A free virtual assistant designed to keep your child’s information at your fingertips, and to help keep you organized.
Link: Interactive Planner for Caregivers

Juvenile Diabetes Research Foundation

Dedicated to Type 1 Diabetes (T1D) research to improve the lives of all people affected by T1D.
Website: Juvenile Diabetes Research Foundation – Greater Delaware Valley Chapter
Contact: (610) 664-9255

The Leukemia & Lymphoma Society

Funding blood cancer research and providing education and patient services.
Website: Delaware Chapter – Leukemia & Lymphoma Society
Website:
 The Leukemia & Lymphoma Society
Contact: Local (302) 661-7300 / National (800) 955-4572

March of Dimes Birth Defects Foundation

Helping moms have full-term pregnancies and researching the problems that threaten the health of babies. Supporting families if something does go wrong.
Website: March of Dimes National Organization
Contact: Delaware Chapter (302) 225-1020 / National (888) MODIMES (888-663-4637)

Mid-Atlantic ADA Center

Providing information, guidance and training on the Americans with Disabilities Act (ADA) for businesses, government entities, organizations, and individuals in the Mid-Atlantic Region, including Delaware.

Website: Mid Atlantic ADA Center
Link: Mid-Atltantic ADA Center E-Bulletins

Mom’s Rising.Org

Taking on the most critical issues facing women, mothers, and families by educating the public and mobilizing massive grassroots actions.
Website: Mom’s Rising

Multiple Sclerosis Society

A community of individuals who are committed to achieving a world free of Multiple Sclerosis.
Website: Multiple Sclerosis Society – Greater Delaware Valley Chapter
Website: National Multiple Sclerosis Society
Contact: (215) 271-2400 / (800) 344-4867

Muscular Dystrophy Association, Inc.

Dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases, as well as providing comprehensive health care services and support to MDA families.
Website: Muscular Dystrophy Association
Link: MDA in Delaware
Contact:
(800) 572-1717

-Kent, Sussex Counties: 8501 LaSalle Rd #106, Towson, MD  21286
Local Contact: (410) 494-7106 or (888) 484-7072
-New Castle County: 600 Reed Rd #104, Broomall, PA  19008
Local Contact: (610) 325-5758

National Center for Medical Home Implementation

The National Center is focused on ensuring that all children and youth receive care within, and have access to, a medical home. NCMHI is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics.

Website: National Center for Medical Home Implementation

National Center on Physical Activity and Disability (NCHPAD)

Dedicated to effecting change in health promotion/obesity managament among people with disabilities through advocacy, services, and programs.

Website: National Center on Physical Activity and Disability
Contact: (800) 900-8086

National Dissemination Center for Children with Disaiblities (NICHCY)

NICHCY is a central source of information on disabilities in infants, toddlers, children and youth.
Website: NICHCY
Address: 1825 Connecticut Ave NW, Washington, DC  20009
Toll Free Contact: (800) 695-0285 (Voice/TTY)

National Kidney Foundation

Dedicated to fighting kidney disease.
Website: The National Kidney Foundation
Contact: (800) 622-9010
NKF Cares Patient Information Help Line: (855) NKF-CARES / (855) 653-2273)

Maryland  & Delaware Chapter:
Website: National Kidney Foundation – Maryland & Delaware
Contact: (410) 494-8545

Networking

The Beach Center on Disabilities – Committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability.
Contact: (785) 864-7600

The Center for Children with Special Needs – Improving and promoting the health and well being of children with special health care needs and their families. Find information on diagnoses, organize medical information with a Care Notebook, create a plan of care, find support, or look up community based resources.
Contact: (206) 884-5735

Office of Disability Employment Policy – ODEP

Promoting policies and coordinates with employers and all levels of government to increase workplace success for people with disabilities.
Website: Office of Disability Employment Policy

Parent to Parent USA

Providing emotional and informational support to families of children with special needs, most notably through one-to-one matching of parents seeking support with an experienced, trained ‘Support Parent.’ Delaware Family Voices is the official Delaware Parent to Parent program and alliance member of Parent to Parent USA.
Website: Parent To Parent USA
Link: P2P Program – Delaware Family Voices
Contact Delaware Family Voices for more information about the Delaware Parent to Parent program.

Physical Activity and Health for Persons with Disabilities

A report of the Surgeon General on the benefits of physical activity on the health of persons with disabilities.
Website: Physical Activity and Health for Persons with Disabilities

Practice Without Pressure, Inc.

Helping those who experiences stress or anxiety during medical, dental or personal care procedures, especially people with intellectual or cognitive disabilities.
Website: Practice Without Pressure
Contact: (302) 562-9349

Prader-Willi Syndrome Association

Providing support services for families and people with PWS.
Website: Prader-Willi Association
Contact: (800) 926-4797

Rare Diseases/Disorders

 Global Genes Project – Allies in RARE Disease – Connecting, empowering and inspiring the rare disease community.
Contact: (949) 248-RARE (7273)

National Organization for Rare Disorders – NORD – Dedicated to helping people with rare “orphan” diseases. Committed to the identification, treatment and cure of rare disorders through programs, education, advocacy, research and service.
Contact: (800) 999-6673 / en espanol llame (844) 259-7178

Special Moms Network

A support system of thousands of moms of children with special needs whose mission is to educate, support, and empower the lives of our special children, our families and our communities. 
Website: Special Moms Network

Special Needs Stop

Giving individuals with disabilities and their families a place to join an online community established to inform, inspire, and connect with others. Helping families locate resources, purchase products, read tips and find advice.
Website: Special Needs Stop

Spina Bifida Association of Delaware

Promoting public awareness, helping aid in the prevention of Spina Bifida (SB), and enhancing the lives of those affected by SB.
Website: Spina Bifida Association
Website: Spina Bifida Association of Delaware Valley
Contact: (610) 446-1066 / 800-223-0222

United Cerebral Palsy Of Delaware, Inc.

A resource for individuals with cerebral palsy and other disabilities, their families, and their communities.
Website:United Cerebral Palsy
Website
:
United Cerebral Palsy of Delaware 
Contact – New Castle County: (302) 764-2400 / TTY/TTD- 302-764-8708
Contact – Kent/Sussex Counties: (302) 335-5626
Client Assistance Program: 302.764.6216

We Stand 4 Something

A resource center and a leading service provider for individuals with disabilities in the states of DE and MD, through the use of educational programs, life coaching, and community involvement.
Website: We Stand 4 Something

321 Foundation

A not for profit organization dedicated to empowering all people with Down Syndrome, their families and friends in the community through advocacy, education and support.
Website: 321 Foundation

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