Advocacy/Disability

ABLE National Resource Center

Providing families with resources from disability organizations nationwide. Bringing together the investment, support and resources of the country’s largest and most influential national disability organizations.
Website: ABLE National Resource Center

Link: Delaware ABLE

Link: Michigan ABLE – Open to residence across MI and the country.

Americans with Disabilities Act (ADA)

Providing information and technical assistance on the Americans with Disabilities Act (ADA), including publications and videos that answer many ADA related questions.
Website: Americans with Disabilities Act. gov

Link: The ADA – Your Employment Rights as an Individual with a Disability – Information from U.S. Department of Labor on sections of the ADA that prohibit discrimination in employer-provided health insurance.

ADAPT

A national grass roots community that organizes disability rights activists to engage in non-violent direction action to assure the civil and human rights of people with disabilities to live in freedom.
Website: ADAPT
Delaware Contact: Delaware ADAPT Group
Contact: (302) 453-8537

Adaptive Physical Education (PE) Central

Providing the latest information about the developmentally appropriate physical education programs for children.
Website: PE Central
Link: Adaptive Physical Education Websites

Aging and Disability Resource Center (ADRC) of Delaware

ADRC is a one-stop access point for aging and disability information and resources in Delaware.
Website: Delaware ADRC
Toll Free: (800)-223-9074
Contact:(302) 391-3505 or (302) 424-7141 (TDD)

American Lung Association of the Mid-Atlantic

Providing you with the most up to date information available to fight lung disease and promote lung health.
Website: The American Lung Association The Mid-Atlantic
Contact: (302) 737-6414
Address: 630 Churchman’s Road Suite 202, Newark, DE 19702

Online Asperger Syndrome Information and Support (OASIS)

Creating a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism and Pervasive Developmental Disorder/ Not Otherwise Specified (PDD/NOS)
Website: OASIS @MAAP
Contact: (219) 662-1311

ARC of Delaware

The ARC advocates for the rights, opportunities and self-determination of people with intellectual and developmental disabilities and their families.
Local Website: The Arc of Delaware
National Website: The Arc
Address: 2 South Augustine Street (Suite B), Wilmington, DE  19804
Contact: (302) 996-0683
Toll Free: 1-800-232-5460

Attention Deficit / Hyperactivity Disorder – CDC Guides

By the Center for Disease Control and Prevention (CDC). Providing resources, guidelines, diagnosis and treatment options for Attention Deficit / Hyperactivity Disorder (ADHD).

Website: CDC Guide – ADHD
Link: ADHD Guidelines
Link: ADHD Treatment

Autsim: Children’s National Hospital

Website: Children’s National Medical Center
Search for “Center for Autism Spectrum Disorders,” and click on “Resources for Families.”

Autism Classroom

Providing educational assistance to anyone teaching children with autism. Find information like running a successful autism classroom, setting up spaces in the home, as well as books and apps.
Website: Autism Classroom

Autism Resources – Healthfinder.gov

Learn about common signs, causes, treatment, and services available for children with autism.
Website: Healthfinder.gov’s Autism Resources

Autism Society of Delaware

Providing much needed services and support to Delaware’s autism community and providing a voice in Dover, in the classroom, and wherever else advocacy for the autism community is needed.
Website: Autism Society of Delaware

New Castle County: 924 Old Harmony Road, Ste. 201, Newark, DE  19713
Contact: (302) 224-6020

Kent/Sussex Counties: 16394 Samual Paynter Blvd, Suite 201, Milton DE 19968
Contact: (302) 644-3410

Autism Spectrum Disorders – The National Professional Development Center

A multi-university center to promote the use of evidence-based practice for children and adolescents with autism spectrum disorder. Find helpful resources including Evidence-Based Practices for Autism Spectrum Disorders and Autism Internet Modules.

Website: Autism Spectrum Disorders
Link to Evidence based Practices:  Evidence-Based Practice Briefs

BlindSight Delaware

Improving the quality of life for blind and visually impaired children and adults in Delaware through education, counseling and recreation programs.
WebsiteBlindSight Delaware
Address: 2915 Newport Gap Pike, Wilmington DE, 19808
Contact: (302) 998-5913
Toll Free: (888) 777-6925

Brain Injury Resources – National

Brain Injury Association of America (BIAA)

Mount Sinai School of Medicine-Brain Injury Research Center of Mount Sinai (BIRC-MS)

List of HRSA grantees receiving Health Center Quality Improvement and Patient Centered Medical Home Supplemental Funding

List of SAMHSA grantees receiving Primary and Behavioral Health Integration awards

Center for Neuroscience and Regnerative Medicine

US Department of Veteran’s Affairs Homeless Veterans Grant and per Diam Program

US Department of Veteran’s Affairs National Call Center for Homeless Veterans and 1-877-4AID VET

U.S. Government Accountability Office (GAO)
Highlights of GAO-11-611, a Report to Congressional Requesters
GAO Report to Congressional Requesters

Brain Injury Association of Delaware – BIADE

Creating a better tomorrow for those affected by brain injury through prevention, education and advocacy.
Website: Brain Injury Association of DE
Address: 32 W. Lockerman Street, Ste. 103, Dover, DE  19904
Contact: (302) 411-0505

Brain Injury Program – HRSA (Health Resources & Services Administration)

Providing information and resources on issues relevant to individuals with TBI and their families, including the HRSA TBI Program and HRSA TBI grantees. Learn about the complex and unique nature of TBI and its effects.
Website: Traumatic Brain Injury Program

Brandywine Special Needs PTA

Working with the school district to provide the best education experience possible for children with special needs.
WebsiteThe Brandywine Special Needs PTA
Contact: Alex Rittberg, (302) 475-2014

Brain Line Military

Dedicated to providing help for military service members, veterans, national guard reserve and families affected by brain injuries. Providing military-specific information and resources on TBI.
Website: BrainLineMilitary

Brain Injury Guide and Resources

Helping people to better understand Traumatic Brain Injury (TBI). Learn more about treatment options and health care providers who offer TBI services.
Website: Brain Injury Education

Caring4OurKids

A collection of resources and links to helpful information for parents of kids with Autism Spectrum Disorder, Chronic Fatigue Syndrome or Fibromyalgia.
Website: Caring4OurKids

Center for Disabilities Studies at The University Of Delaware 

Enhancing the lives of individuals and families by education, prevention, services, and research on disabilities.
Website: Center for Disabilities Studies
Address: University of Delaware, 461 Wyoming Road, Newark, DE  19716
Contact: (302) 831-6974 or (302) 831-4689 (TDD)

Cerebral Palsy Guide

Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
Website: Cerebral Palsy Guide

Cerebral Palsy Guidance

Providing vital guidance and assistance to parents of children with cerebral palsy.
Website: Cerebral Palsy Guidance

Cerebral Palsy.Org – My Child

A comprehensive resource for everything related to Cerebral Palsy. Provides information, tips, resources, encouragement and inspiration to individuals touched by Cerebral Palsy.
Link: My Child at Cerebral Palsy.org

Cerebral Palsy Group

Providing information and support to individuals and their families who have been diagnosed with cerebral palsy.
Link: Cerebral Palsy Group

CHADD (Children and Adults with Hyperactivity Deficit Disorder)

Your source for information and support for people with ADHD. Improving the lives of people affected by ADHD.
Website: CHADD National Organization
Website: Greater Newark CHADD
Address: 9 Maple Avenue, Newark, DE  19711
Contact: (302) 737-5063

Child, Inc.

Helping Delaware children and families in crisis by providing creative prevention and treatment programs that meet the changing needs of families.
WebsiteChild, Inc.
Address: 507 Philadelphia Pike, Wilmington, DE  19809
Contact: (302) 762-8989

Child HELP Foundation

Helping to enhance the lives of children with disabilities.
Website: Child HELP Foundation
Address: 7 Wigeon Place, P.O. Box 437, Wyoming, DE 19934
Contact: (302)697-8595

Children and Families First

Serving children and families in need across Delaware. Providing comprehensive social services programs throughout the state to form a comprehensive continuum of quality social, educational and mental health services.
Website: Delaware Children and Families First
Address: 2005 Baynard Boulevard, Wilmington, DE  19802
Contact: (302) 658-5177 and (800) 220-3092

Children with Disabilities and Transplants

Information for parents on transplants for children with disabilities.
Website: Transplants For Children with Disabilities

Cleft & Craniofacial Anomalies Clinic

Alfred I. DuPont Hospital For Children, 1600 Rockland Road, Wilmington, DE  19899
Contact:  (302) 651-4310
Website: Cleft & Craniofacial Anomolies At A.I duPont Hospital

Communication- Learning to Talk and Listen

An oral language resource for early childhood caregive
Website: Learning to Talk and Listen

Cystic Fibrosis Association

Searching for a cure for cystic fibrosis.
Website: Cystic Fibrosis Association
Website: Delaware Valley Chapter, CFA
Address: 2004 Sproul Road, Suite 208, Broomall, PA
Contact: (610) 325-6001
Toll Free: (800) 378-8423

Delaware 211

Delaware’s FREE online human service referrals and community resources. Provides one central resource for access to the health and human service organizations that offer the support to make a difference.
Website: Delaware 211

Delaware Black Deaf Advocates

Advocating for black deaf and hard of hearing people in the United States.
Website: Delaware Black Deaf Advocates

Delaware Division of Developmental Disabilities Services (DDDS)

Providing leadership for a service system that is responsive to the needs of the people by creating opportunities and promoting possibilities for meeting those needs.
Website: DDDS
Contact: (302) 454-2730
Toll Free: (866) 552-5758

Delaware Division of Visually Impaired

Helping those who are blind and visually impaired to become and/or remain employed, independent and self-sufficient.
Website: DE Division of Visually Impaired

Delaware Family Voices

Supporting families with special needs.
Website: Delaware Family Voices
Address: 222 Philadelphia Pike, Suite 11, Wilmington DE 19809
Contact: (302) 669-3030
Toll Free: (877) 235-3588

Delaware Foundation Reaching Citizens with Cognitive Disabilities (DFRC)

Dedicated to raising funds and consciousness in support of programs that enrich the lives of Delawareans with intellectual disabilities.
Website: DFRC
Address: 640 Plaza Drive, Newark, DE  19702
Contact: (302) 454-2730

Delaware Hands and Voices

Dedicated to supporting families with children who are deaf or hard of hearing, helping them to reach their highest potential.
Website: Delaware Hands and Voices
Contact: (302) 383-9890

Delaware 2-1-1 Helpline

Providing information and referral services through easy to remember phone number, 211.
Website: Delaware Helpline
In Delaware Contact: Call 2-1-1
Toll Free: (800) 560-3372

Different Roads to Learning

Tools for children on the Autism Spectrum. Meeting the needs of parents and professionals working with children on the Autism Spectrum.
Website: Different Roads to Learning
Toll Free Contact: (800) 853-1057

Disability.Gov

A federal government website for comprehensive information about disability-related programs, services, policies, laws and regulations. The site links to thousands of resources from many different federal government agencies, as well as state and local governments and nonprofit organizations across the country.
Website: Disability.Gov

Disabilities Law Program

Helping to provide equal access to justice, and improving lives, through free legal services to people with disabilities, low incomes, or who are age 60 and over.
Website: Disabilities Law Program
Locations: Delaware Office Locations
Contact: (302) 478-8850

Down Syndrome Association of Delaware

A resource promoting public awareness, education and advocacy supporting individuals with Down Syndrome and their families.
Website: Down Syndrom Association of DE
Contact: (302) 995-1004

Dover Air Force Base Family Advocacy Program

Special Needs Program/EFMP
Address: 436 MDOS/SGOHF, 263 Chad Street, Dover Air Force Base, Dover, DE  19902
Contact: (302) 677-2711

Easter Seals Delaware And Maryland’s Eastern Shore

Providing exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.
Website, Local ChapterEaster Seals Delaware and Maryland Eastern Shores
Website, National OrganizationEaster Seals National
Address: 61 Corporate Circle, New Castle, DE  19720-2405
Contact: (302) 324-4444
Toll Free: (800) 677-3800

Epilepsy Foundation

A statewide organization dedicated to improving the lives of people with seizures.
Website, Local Chapter: Epilepsy Foundation of Delaware
Website, National Organization: Epilepsy Foundation
Address: 240 N. James Street, Ste. 104, Newport, DE  19804
Contact: (302) 999-9313 – Kent/Sussex Counties use (877) 369-2266

Facts About Mental Disability

Resource Page from DoSomething.org, a non-profit organization for young people and social change:
Website: 11 Facts About Mental Disability

Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence – SAMHSA

Facilitating the development and improvement of behavioral health prevention and treatment systems by reduing the number of infants born prenatally exposed to alcohol and to help those who have FASD.
Website: Fetal Alcohol Spectrum Disorders
Contact: (866) STOPFAS – 786-7327

Fetal Alcohol Spectrum Disorders (FASD) Task Force of Delaware

Providing leadership and fostering effective collaboration in addressing FASD prevention and intervention statewide.
Website: FASD Task Force of Delaware

Healthy Children.Org

From the American Academy of Pediatrics. Dedicated to the physical, mental, and social health, safety and well-being of infants, children, adolescents, and young adults.
Website: Healthy Children
Address: The American Academy of Pediatrics, 141 Northwest Point Blvd. Elk Grove Village, IL 60007
Contact: (847) 434-4000

Hearing Loss Association of America

Providing assistance and resources for people with hearing loss and their families to learn how to adjust to living with a hearing loss.
Website: Hearing Loss Association of America
Contact: (301) 657-2248

Website Delaware Chapter: Hearing Loss Association of Delaware
Address: 3204 Powhatan Dr, Wilmington DE 19808
Contact – Wilmington Chapter – (302) 292-3066 (V/Relay)
Contact – Kent/Sussex County Chapter – (302) 674-3272 (V/Relay)

Hemiplegia & Stroke Association – Children

Helping children who have survived an early brain injury that results in hemiplegia or hemiparesis.
Website: Children’s Hemiplegia & Stroke Association

Infant Hearing Resources

Essential sources of information for families with children with hearing deficiencies.

Link: Just In Time – Hearing Resources for Families
Link: Justo A Tiempo – Guia de Recursos de la Deficiencia Auditiva para Familias

Website: Infant Hearing.org – National Center for Hearing Assessment and Management.

Juvenile Diabetes Research Foundation

Dedicated to Type 1 Diabetes (T1D) research to improve the lives of all people affected by T1D.
Website: Juvenile Diabetes Research Foundation – Delaware
Address: 100 West 10th Street, Ste. 1103, Wilmington, DE  19801
Contact: (302) 888-1117

The Leukemia & Lymphoma Society

Funding blood cancer research and providing education and patient services.
Website: The Leukemia & Lymphoma Society
Address – Delaware Chapter: 100 W. 10th Street, Ste. 209, Wilmington DE
Contact: (302) 661-7300

March of Dimes Birth Defects Foundation

Helping moms have full-term pregnancies and researching the problems that threaten the health of babies. Supporting families if something does go wrong.
Website, Local Chapter: March of Dimes – Delaware
Website, National Organization: March of Dimes
Address: 5620 Kirkwood Hwy, Wilmington DE 19808
Contact: (302) 225-1020

Mid-Atlantic ADA Center

Providing information, guidance and training on the Americans with Disabilities Act (ADA) for businesses, government entities, organizations, and individuals in the Mid-Atlantic Region, including Delaware.

Website: Mid Atlantic ADA Center
Link: Mid-Atltantic ADA Center E-Bulletins

Mom’s Rising.Org

Dedicated to helping women with the most critical issues they face.
Website: Mom’s Rising

Multiple Sclerosis Society

A community of individuals who are committed to achieving a world free of Multiple Sclerosis.
Website, Local Chapter: The Multiple Sclerosis Society – Delaware
Website, National Organization: National Multiple Sclerosis Society
Address: 2 Mill Road, Ste. Suite 106, Wilmington, DE  19806
Contact: (302) 655-5610

Muscular Dystrophy Association, Inc.

Dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases, as well as providing comprehensive health care services and support to MDA families.
Website: Muscular Dystrophy Association
Toll Free Contact: (800) 572-1717

Address – Kent and Sussex Counties: 8501 LaSalle Rd #106, Towson, MD  21286
(410) 494-7106 or (888) 484-7072

Address – New Castle County: 600 Reed Rd #104, Broomall, PA  19008
(610) 325-5758

National Center for Medical Home Implementation

The National Center is focused on ensuring that all children and youth receive care within, and have access to, a medical home. NCMHI is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics.

Website: National Center for Medical Home Implementation

National Center on Physical Activity and Disability (NCHPAD)

Dedicated to effecting change in health promotion/obesity managament among people wtih disabilities through advocacy, services, and programs.
Website:
 National Center on Physical Activity and Disability
Toll Free Contact: (800) 900-8086

National Center for Project Access (NCPA) at the Epilepsy Foundation

Striving to improve access to comprehensive, coordinated health care and related services for children and youth with epilepsy residing in rural and medically underserved areas.
Website: NCPA at the Epilepsy Foundation

National Dissemination Center for Children with Disaiblities (NICHCY)

NICHCY is a central source of information on disabilities in infants, toddlers, children and youth.
Website: NICHCY
Address: 1825 Connecticut Ave NW, Washington, DC  20009
Toll Free Contact: (800) 695-0285 (Voice/TTY)

National Kidney Foundation

Dedicated to fighting kidney disease.
Website, National Organization: The National Kidney Foundation
Address: 30 East 33rd St, New York NY 10016
Toll Free Contact: (800) 622-9010

Delaware Valley Chapter – Serving New Castle County
Website: National Kidney Foundation of Delaware Valley
Address: 111 S. Independence Mall E. Suite 411, Philadelphia, PA  19106
Contact: (800) 697-7007 or (215) 923-8611

Maryland ChapterServing Kent & Sussex Counties
Website: National Kidney Foundation of Maryland
Address: 1301 York Rd Suite 404, Lutherville MD
Contact: (410) 494-8545

Networking

The Beach Center on Disabilities – Committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability.
Contact: (785) 864-7600

The Center for Children with Special Needs – Improving and promoting the health and well being of children with special health care needs and their families. Find information on diagnoses, organize medical information with a Care Notebook, create a plan of care, find support, or look up community based resources.
Contact: (206) 884-5735

Parent to Parent USA

Parent to Parent USA has been providing emotional and informational support to the families of children with special needs, most notably through the one-to-one matching of parents seeking support with an experienced, trained ‘Support Parent’. Delaware Family Voices is the official Delaware Parent to Parent program and alliance member of Parent to Parent USA.
Website: Parent To Parent USA
Link: Delaware Family Voices P2P program page.
Contact Delaware Family Voices for more information about the Delaware Parent to Parent program.

Physical Activity and Health for Persons with Disabilities

A report of the Surgeon General on the benefits of physical activity on the health of persons with disabilities.
Website: Physical Activity and Health for Persons with Disabilities

Practice Without Pressure, Inc.

Helping people, especially those with disabilities, to receive quality medical, dental and personal care with dignity and respect.
Website: Practice Without Pressure
Address – Practice & Procedure Center: 2470 Sunset Lake Rd, Newark DE 19702
Contact: (302) 832-2800

Prader-Willi Syndrome Association

Providing support services for families and people with PWS.
Website: Prader-Willi Association
Contact: (302) 791-0102

Prompt and Play

Providing a safe place for children ages 3 to 18 to develop social and daily living skills though exploration and direction.
Website: Prompt & Play
Address: 5157 W. Woodmill Rd. Suite 16, Wilmington DE 19808
Contact: (302) 691-5658

Rare Diseases/Disorders

 The Global Genes Project – A RARE Disease Network – Promoting the needs of the rare and genetic disease community.
Contact: (949) 248-RARE (7273)

National Organization for Rare Disorders – NORD – Dedicated to helping people with rare “orphan” diseases. Committed to the identification, treatment and cure of rare disorders through programs, education, advocacy, research and service.
Toll Free Contact: (800) 999-6673

Special Needs Stop

Giving individuals with disabilities and their families a place to join an online community established to inform, inspire, and connect with others. Helping families locate resources, purchase products, read tips and find advice.
Website: Special Needs Stop

Spina Bifida Association of Delaware

Promoting public awareness, helping aid in the prevention of SB, and enhancing the lives of those affected by SB.
Website: Delaware Chapter: Spina Bifida Association of Delaware
Website: National Organization: Spina Bifida Association
Address: P.O. Box 807, Wilmington, DE  19899
Contact: (302) 478-4805

United Cerebral Palsy Of Delaware, Inc.

Educating, advocating and providing support services to ensure a life without limits for people wtih a spectrum of disabilities.
Website, UCP Delaware: UPC of Delaware 
Website, National Organization:
 United Cerebral Palsy

Address – New Castle County: 700 A River Road, Wilmington, DE  19809
Contact: (302) 764-2400

Address – Kent/Sussex Counties: 3249 Midstate Rd, Felton DE 19943
Contact: (302) 335-5626

321 Foundation

A not for profit organization dedicated to empowering all people with Down Syndrome, their families and friends in the community through advocacy, education and support.
Website: 321 Foundation

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