Advocacy/Disability
ABLE National Resource Center
Providing families with resources from disability organizations nationwide. Bringing together the investment, support and resources of the country’s largest and most influential national disability organizations.
Website: ABLE National Resource Center
Link: Compare State ABLE Programs
Link: Delaware ABLE
American Foundation for The Blind
Creating a world of no limits for people who are blind or visually impaired. Mobilizing leaders, advance understanding, and champion impactful policies and practices using research and data.
Website: American Foundation for The Blind
Americans with Disabilities Act (ADA)
Providing information and technical assistance on the Americans with Disabilities Act (ADA), including publications and videos that answer many ADA related questions.
Website: Americans with Disabilities Act. gov
Link: The ADA – Your Employment Rights as an Individual with a Disability – Information from U.S. Department of Labor on sections of the ADA that prohibit discrimination in employer-provided health insurance.
ADAPT
A national grass roots community that organizes disability rights activists to engage in non-violent direction action to assure the civil and human rights of people with disabilities to live in freedom.
Website: ADAPT
Contact Delaware ADAPT: Delaware ADAPT Group
Adaptive Physical Education (PE) Central
Providing the latest information about the developmentally appropriate physical education programs for children.
Website: PE Central
Link: Adaptive Physical Education Websites
Link: Adapted Physical Education Information/Resources
ADDitude – Inside the ADHD Mind
Resources for families and adults with ADHD and related conditions, and the professionals who work with them.
Website: ADDitude Magazine
Aging and Disability Resource Center (ADRC) of Delaware
ADRC is a one-stop access point for aging and disability information and resources in Delaware.
Website: Delaware ADRC
Toll Free: (800)-223-9074
Email: DelawareADRC@delaware.gov
American Lung Association of Delaware
Providing you with the most up to date information available to fight lung disease and promote lung health.
Website: The American Lung Association – National
Link: The American Lung Association – Delaware
Contact: (302) 737-641
Asthma – Quality & Affordable Healthcare Fact Sheet
Guideline on the importance of quality and affordable healthcare coverage for people with asthma.
Link: Asthma – Quality & Affordable Healthcare Fact Sheet
ARC of Delaware
The ARC advocates for the rights, opportunities and self-determination of people with intellectual and developmental disabilities and their families.
Local Website: The Arc of Delaware
National Website: The Arc
Address: 2 South Augustine Street (Suite B), Wilmington, DE 19804
Contact: (302) 996-0683 / Toll Free: 1-800-232-5460
Attention Deficit / Hyperactivity Disorder – CDC Guides
By the Center for Disease Control and Prevention (CDC). Providing resources, guidelines, diagnosis and treatment options for Attention Deficit / Hyperactivity Disorder (ADHD).
Website: CDC ADHD Guide
Link: CDC Treatment of ADHD
BlindSight Delaware
Improving the quality of life for blind and visually impaired children and adults in Delaware through education, counseling and recreation programs.
Website: BlindSight Delaware
Contact: (302) 998-5913 / Toll Free: (888) 777-6925
Brain Injury Resources – National
Brain Injury Association of America (BIAA)
Mount Sinai School of Medicine-Brain Injury Research Center of Mount Sinai (BIRC-MS)
Center for Neuroscience and Regnerative Medicine
Brain Injury Association of Delaware – BIADE
Creating a better tomorrow for those affected by brain injury through prevention, education and advocacy.
Website: Brain Injury Association of DE
Contact: (302) 411-0505
Brain Injury Fund Assistance
State Council for Persons with Disabilities – funding available for the Traumatic Brain Injury Fund.
Link: Application for Brain Injury Fund Assistance
Brain Injury Program – Administration for Community Living
Providing information and resources on issues relevant to individuals with TBI and their families. Learn about the complex and unique nature of TBI and its effects.
Website: Traumatic Brain Injury Program
Brain Line Military
Dedicated to providing help for military service members, veterans, national guard reserve and families affected by brain injuries. Providing military-specific information and resources on TBI.
Website: BrainLineMilitary
Brain Injury Guide and Resources
Helping people to better understand Traumatic Brain Injury (TBI). Learn more about treatment options and health care providers who offer TBI services.
Website: Brain Injury Education
Caring4OurKids
A collection of resources and links to helpful information for parents of kids with Autism Spectrum Disorder, Chronic Fatigue Syndrome or Fibromyalgia.
Website: Caring4OurKids
Center for Disabilities Studies at The University Of Delaware
Enhancing the lives of individuals and families by education, prevention, services, and research on disabilities.
Website: Center for Disabilities Studies
Address: University of Delaware, 461 Wyoming Road, Newark, DE 19716
Contact: (302) 831-6974 or (302) 831-4689 (TDD)
Cerebral Palsy Guide
Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
Website: Cerebral Palsy Guide
Cerebral Palsy Guidance
Providing vital guidance and assistance to parents of children with cerebral palsy.
Website: Cerebral Palsy Guidance
Cerebral Palsy.Org – My Child
A comprehensive resource for everything related to Cerebral Palsy. Provides information, tips, resources, encouragement and inspiration to individuals touched by Cerebral Palsy.
Link: My Child at Cerebral Palsy.org
Cerebral Palsy Group
Providing information and support to individuals and their families who have been diagnosed with cerebral palsy.
Link: Cerebral Palsy Group
CHADD (Children and Adults with Hyperactivity Deficit Disorder)
Your source for information and support for people with ADHD. Improving the lives of people affected by ADHD.
Website: CHADD National Organization
Child, Inc.
Helping Delaware children and families in crisis by providing creative prevention and treatment programs that meet the changing needs of families.
Website: Child, Inc.
Contact: (302) 762-8989
Children and Families First
Serving children and families in need across Delaware. Providing comprehensive social services programs throughout the state to form a comprehensive continuum of quality social, educational and mental health services.
Website: Delaware Children and Families First
Contact: (302) 658-5177 / (800) 220-3092
Children with Diabetes
Supporting children with diabetes and their families. Dedicated to providing education and support to families living with type 1 diabetes.
Website: Children with Diabetes
Children with Disabilities and Transplants
Information for parents on transplants for children with disabilities.
Website: Transplants For Children with Disabilities
Cleft & Craniofacial Anomalies Clinic
Alfred I. DuPont Hospital For Children, 1600 Rockland Road, Wilmington, DE 19899
Contact: (302) 651-4310
Website: Cleft & Craniofacial Anomolies At A.I duPont Hospital
Cystic Fibrosis Association
Searching for a cure for cystic fibrosis.
Website: Cystic Fibrosis Association
Website: Delaware Valley Chapter, CFA
Contact: (610) 325-6001 / Toll Free: (800) 378-8423
Delaware 2-1-1 Helpline
Delaware’s FREE online human service referrals and community resources. Provides one central resource for access to the health and human service organizations that offer the support to make a difference.
Website: Delaware 2-1-1
In Delaware: Call 2-1-1 or Toll Free: (800) 560-3372 or text: 302-231-1464
Delaware Division of Developmental Disabilities Services (DDDS)
Providing leadership for a service system that is responsive to the needs of the people by creating opportunities and promoting possibilities for meeting those needs.
Website: Delaware Division of Developmental Disabilities Services
Contact: (302) 836-2100 / Toll Free: (866) 552-5758
Delaware Division of Visually Impaired
Helping the blind and visually impaired to become and/or remain employed, independent, self-sufficient.
Website: DE Division of Visually Impaired
Delaware Family Voices
Supporting families with special needs.
Website: Delaware Family Voices
Address: 222 Philadelphia Pike, Suite 11, Wilmington DE 19809
Contact: (302) 669-3030 / Toll Free: (877) 235-3588
Delaware Foundation Reaching Citizens with Cognitive Disabilities (DFRC)
Dedicated to raising funds and consciousness in support of programs that enrich the lives of Delawareans with intellectual disabilities.
Website: Delaware Foundation Reaching Citizens
Contact: (302) 454-2730
Delaware Disabilities Law Program
Helping to provide equal access to justice, and improving lives, through free legal services to people with disabilities, low incomes, or who are age 60 and over.
Website: Delaware Community Legal Aid Society
Link: Delaware Legal Help Link
Down Syndrome Association of Delaware
Promoting public awareness, education and advocacy supporting individuals with Down Syndrome and their families.
Website: Down Syndrom Association of DE
Contact: (302) 995-1004
Dover Air Force Base Family Advocacy Program
Special Needs Program/EFMP
Website: Dover AFB Family Advocacy Program
Contact: (302) 677-2711
Easter Seals Delaware And Maryland’s Eastern Shore
Providing exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.
Website: Easter Seals Delaware and Maryland Eastern Shores
Website: Easter Seals National Organization
Address: 61 Corporate Circle, New Castle, DE 19720-2405
Contact: (302) 324-4444 / Toll Free: (800) 677-3800
Epilepsy Foundation
A statewide and national organization dedicated to improving the lives of people with epilepsy / seizure disorders.
Website: Epilepsy Foundation of Delaware
Website: Epilepsy Foundation – National
Contact: (302) 999-9313 – Kent/Sussex Counties use (877) 369-2266
Fetal Alcohol Spectrum Disorders (FASD) – SAMHSA
Resources to assist people affected by FASD and their families, state and local agency administrators, and service providers.
Website: Fetal Alcohol Spectrum Disorders
Contact: (877) SAMHSA-7 / (877) 726-4727
Fetal Alcohol Spectrum Disorders (FASD) Task Force of Delaware
Providing leadership and fostering effective collaboration in addressing FASD prevention and intervention.
Website: FASD Task Force of Delaware
Healthy Children.Org
The American Academy of Pediatrics, dedicated to the physical, mental, and social health, safety and well-being of infants, children, adolescents, and young adults.
Website: Healthy Children
Contact: (630) 626-6000 (American Academy of Pediatrics for general questions only)
Hemiplegia & Stroke Association – Children
Helping children who have survived a brain injury that results in hemiplegia or hemiparesis.
Website: Children’s Hemiplegia & Stroke Association
The HIE Help Center
The HIE Help Center provides information and educational materials to families of children with Hypoxic-Ischemic Encephalopathy (HIE) to help them navigate the diagnosis.
Website: The HIE Help Center
Interactive Planner for Caregivers
A free virtual assistant designed to keep your child’s information at your fingertips, and to help keep you organized.
Link: Interactive Planner for Caregivers
Juvenile Diabetes Research Foundation
Dedicated to Type 1 Diabetes (T1D) research to improve the lives of all people affected by T1D.
Website: Juvenile Diabetes Research Foundation – Greater Delaware Valley Chapter
Contact: (610) 664-9255
The Leukemia & Lymphoma Society
Funding blood cancer research and providing education and patient services.
Website: Delaware Chapter – Leukemia & Lymphoma Society
Website: The Leukemia & Lymphoma Society
Contact: Local (302) 661-7300 / National (800) 955-4572
March of Dimes Birth Defects Foundation
Helping moms have full-term pregnancies and researching the problems that threaten the health of babies. Supporting families if something does go wrong.
Website: March of Dimes National Organization
Contact: Delaware Chapter (302) 225-1020 / National (888) MODIMES (888-663-4637)
Mid-Atlantic ADA Center
Providing information, guidance and training on the Americans with Disabilities Act (ADA) for businesses, government entities, organizations, and individuals in the Mid-Atlantic Region, including Delaware.
Website: Mid Atlantic ADA Center
Link: Mid-Atltantic ADA Center E-Bulletins
Mom’s Rising.Org
Taking on the most critical issues facing women, mothers, and families by educating the public and mobilizing massive grassroots actions.
Website: Mom’s Rising
Multiple Sclerosis Society
A community of individuals who are committed to achieving a world free of Multiple Sclerosis.
Website: Multiple Sclerosis Society – Greater Delaware Valley Chapter
Website: National Multiple Sclerosis Society
Contact: (215) 271-2400 / (800) 344-4867
Muscular Dystrophy Association, Inc.
Dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases, as well as providing comprehensive health care services and support to MDA families.
Website: Muscular Dystrophy Association
Link: MDA in Delaware
Contact: (800) 572-1717
-Kent, Sussex Counties: 8501 LaSalle Rd #106, Towson, MD 21286
Local Contact: (410) 494-7106 or (888) 484-7072
-New Castle County: 600 Reed Rd #104, Broomall, PA 19008
Local Contact: (610) 325-5758
National Center for Medical Home Implementation
The National Center is focused on ensuring that all children and youth receive care within, and have access to, a medical home. NCMHI is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics.
Website: National Center for Medical Home Implementation
National Center on Physical Activity and Disability (NCHPAD)
Dedicated to effecting change in health promotion/obesity managament among people with disabilities through advocacy, services, and programs.
Website: National Center on Physical Activity and Disability
Contact: (800) 900-8086
National Dissemination Center for Children with Disaiblities (NICHCY)
NICHCY is a central source of information on disabilities in infants, toddlers, children and youth.
Website: NICHCY
Address: 1825 Connecticut Ave NW, Washington, DC 20009
Toll Free Contact: (800) 695-0285 (Voice/TTY)
National Kidney Foundation
Dedicated to fighting kidney disease.
Website: The National Kidney Foundation
Contact: (800) 622-9010
NKF Cares Patient Information Help Line: (855) NKF-CARES / (855) 653-2273)
Maryland & Delaware Chapter:
Website: National Kidney Foundation – Maryland & Delaware
Contact: (410) 494-8545
Networking
The Beach Center on Disabilities – Committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability.
Contact: (785) 864-7600
The Center for Children with Special Needs – Improving and promoting the health and well being of children with special health care needs and their families. Find information on diagnoses, organize medical information with a Care Notebook, create a plan of care, find support, or look up community based resources.
Contact: (206) 884-5735
Office of Disability Employment Policy – ODEP
Promoting policies and coordinates with employers and all levels of government to increase workplace success for people with disabilities.
Website: Office of Disability Employment Policy
Parent to Parent USA
Providing emotional and informational support to families of children with special needs, most notably through one-to-one matching of parents seeking support with an experienced, trained ‘Support Parent.’ Delaware Family Voices is the official Delaware Parent to Parent program and alliance member of Parent to Parent USA.
Website: Parent To Parent USA
Link: P2P Program – Delaware Family Voices
Contact Delaware Family Voices for more information about the Delaware Parent to Parent program.
Physical Activity and Health for Persons with Disabilities
A report of the Surgeon General on the benefits of physical activity on the health of persons with disabilities.
Website: Physical Activity and Health for Persons with Disabilities
Practice Without Pressure, Inc.
Helping those who experiences stress or anxiety during medical, dental or personal care procedures, especially people with intellectual or cognitive disabilities.
Website: Practice Without Pressure
Contact: (302) 562-9349
Prader-Willi Syndrome Association
Providing support services for families and people with PWS.
Website: Prader-Willi Association
Contact: (800) 926-4797
Rare Diseases/Disorders
Global Genes Project – Allies in RARE Disease – Connecting, empowering and inspiring the rare disease community.
Contact: (949) 248-RARE (7273)
National Organization for Rare Disorders – NORD – Dedicated to helping people with rare “orphan” diseases. Committed to the identification, treatment and cure of rare disorders through programs, education, advocacy, research and service.
Contact: (800) 999-6673 / en espanol llame (844) 259-7178
Special Moms Network
A support system of thousands of moms of children with special needs whose mission is to educate, support, and empower the lives of our special children, our families and our communities.
Website: Special Moms Network
Special Needs Stop
Giving individuals with disabilities and their families a place to join an online community established to inform, inspire, and connect with others. Helping families locate resources, purchase products, read tips and find advice.
Website: Special Needs Stop
Spina Bifida Association of Delaware
Promoting public awareness, helping aid in the prevention of Spina Bifida (SB), and enhancing the lives of those affected by SB.
Website: Spina Bifida Association
Website: Spina Bifida Association of Delaware Valley
Contact: (610) 446-1066 / 800-223-0222
United Cerebral Palsy Of Delaware, Inc.
A resource for individuals with cerebral palsy and other disabilities, their families, and their communities.
Website:United Cerebral Palsy
Website: United Cerebral Palsy of Delaware
Contact – New Castle County: (302) 764-2400 / TTY/TTD- 302-764-8708
Contact – Kent/Sussex Counties: (302) 335-5626
Client Assistance Program: 302.764.6216
We Stand 4 Something
A resource center and a leading service provider for individuals with disabilities in the states of DE and MD, through the use of educational programs, life coaching, and community involvement.
Website: We Stand 4 Something
321 Foundation
A not for profit organization dedicated to empowering all people with Down Syndrome, their families and friends in the community through advocacy, education and support.
Website: 321 Foundation